Trust: hard won, easily lost utilise witches.town. Vous pouvez læ suivre et interagir si vous possédez un compte quelque part dans le "fediverse".
also so many of my role models or people i looked up to basically died in poverty of illnesses that could have been treated were it not for shitty medical systems
and
sometimes i wonder if i'll be like them
i hate that i am more educated on my illness than my doctors and yet they still refuse to believe me, among other things
its gotten noticably worse over the last month, again, theres two jumps like that per year, its.
not good.
theres also no like, cure, but slowing it would be cool
@nire you have EDS right? could the progress be related to HRT? because it can react significantly to hormone levels. just an idea, in case you haven't thought about that yet